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Archive for March 3rd, 2010

Project 365 Day 61

Posted by Heather Manning On March - 3 - 2010

Project365-2010-61

Yes, Nano wears my underwear as a sash. (those came out of a clean basket.)  And yes, those are granny panties.  And yes, Pato keeps trying to throw them away.  I say, they are good for an emergency, like when you’re out of underwear?  Or when you’re feeling fat? 

Yes, that is Christiano’s toy box piled up behind him.  There is no room in any of the bedrooms left for another toy box.  Each of the girls have one that size and a chest in their room.  Jordan has one that size and a chest in his room.  Christiano’s stuff takes up a living room wall. :)

In my defense, he’s wearing the same shirt I put him in last night.  I noticed Pato hadn’t changed him out of his “pajamas” when I got back from conferences.  I left him in it for dinner and changed him into clean jammies after dinner for bed.  Promise.

ETA – I forgot to say that he emptied my whites, I guess to find that perfect pair of panties, and put them on all by himself.  The child is confused.

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Little Bryce

Posted by Heather Manning On March - 3 - 2010

I have to share the story of one of my old friend’s child.  His little boy Bryce is only 3 days older than Christiano and this little boy has had one heck of a ride so far in his short little life.  And what a fighter he is!

It was really hard to choose between all of the pictures that Sean sent me so I made a slide show of quite a few of them.   

My name is Bryce Caldwell and my story is a sad one, but one that needs to be told. I was diagnosed with Hydrocephalus, Homocysteine, and severe MTHFR deficiency (a rare disease which only about 200,000 people in the US have) all before I was six months old.
My long awaited arrival came on February 20, 2009. My parents and my older brother Jordan were elated at the thought of bringing me home and starting our life together. Little did they, or anyone know that our time together was about to take a very difficult turn.
At first, things seemed to be going along with no problems. I was, or seemed to be, a typical newborn. Then suddenly, things started to change; I was sleeping more and eating less. My parents were worried so my dad took me to the doctor. The doctor couldn’t find anything seriously wrong with me, but decided to go ahead and admit me into Casa Grande Regional Medical Center for dehydration. The doctor said I should bounce back within a few hours; however that was not the case. My body was having a difficult time breathing and controlling its temperature so the doctor ordered a Cat Scan of my head. After reading the results of the Cat Scan, they decided to transfer me to Phoenix Children’s Hospital.
Dr. Moss, a neuro-surgeon, immediately came and showed my mom the picture of my brain and it was in bad shape. It looked as if my brain was removed and water dumped in its place. There was so much fluid, that my brain was smashed up against my skull. Dr. Moss said this condition was called Hydrocephalus. He did say my case was so severe that if we had waited any longer they would be planning my funeral.
From that moment to the present, my short life and the lives of my family have forever changed. I have been in and out of Phoenix Children’s Hospital on numerous occasions and have battled through a total of nine surgeries.
During my first surgery, a permanent shunt was placed into my head to help drain the water out of my brain. After surgery, when they tried to remove the breathing tube, they discovered I was no longer able to breathe on my own. The next day, they cut a little hole into my throat and airway and put a trach tube in. My parents have to change out this tube every week for me.
From this point on, things really started to go awry. I came down with pneumonia, had two blood transfusions, and the doctors found thirty to forty bleeds in my brain and didn’t expect me to make it through. They also found a permanent blood clot in my left leg. Just when we thought things couldn’t get any worse, doctors told my parents that due to the damage done to my brain, my eyesight was basically gone.
Although I am home with my family, I am on numerous pieces of medical equipment that allow me to live as normal as normal can be considering my condition. My days are always filled with some form of therapy – speech, physical, developmental, and occupational. Between my therapies and my ongoing doctor’s appointments, my days are never boring.
I know that everything that has happened to me thus far has not been easy on my family. I worry about the mounting bills that my parents face because of my conditions. My parents have had great support from family, friends and the community. I too am thankful for all the people who have, and will continue to help my family get through the difficult times.
Thank you for letting me share my story with you.
Love,
Bryce Caldwell

I wish I was closer because I just want to hug this little guy and his family and help out however I can.  Sean was a friend of mine when we were in school and his family moved to Arizona.  We reconnected over Facebook when I had just found out I was pregnant with Christiano and they had just found out his wife was pregnant with Bryce.  They also have a little boy named Jordan. 

It seems so unfair that babies have to go through this kind of pain.  9 surgeries.  He just turned 1.  9 surgeries in his first year of life.  Why?  The only thing I hold on to when I see little children going through these kind of things is that these children will touch someone, open a heart, touch someone’s life, something.  All I know is that this little baby is strong.  He’s been through more in the life that he has lived so far than I have been through in my 35 years.  I honestly don’t know if I’d be as strong as Bryce has been.  You just have to look at those pictures to know that this little boy is a fighter.  Don’t you just want to kiss those cheeks.

This post isn’t a call for donations, though if you feel so moved, you can visit Bryce’s Caring Bridge page here and in the sidebar is a link to Sean, his father.  It’s a call for thoughts and prayers for him.  Just keep Bryce in your mind.  Keep him on your prayer list.  Keep his family in your thoughts.  As a parent, I can only begin to imagine what this last year has been like for them.  You just want to take it all away, take it all on yourself so that your child doesn’t ever have to hurt. 

I don’t just want to dwell on the hard part though because I’m know that Bryce has been such a light in their lives also.  First smiles, the love that he gives them, the kisses and hugs, all of those beautiful things we parents cherish. 

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The Night From Hades

Posted by Heather Manning On March - 3 - 2010

Do your kids fight like cats and dogs?  I complain about this a lot.  Yet I don’t know how to fix it. 

Last night was horrible.  I was planning on going out to my mom’s with the kids but mom called and said her and dad weren’t going to be home, change of plans, so could we do it another night.  Ok.

I was already all dressed, hair, make up done, youngest 2 ready to walk out the door when Kat and Jordan got home from school.  I called Pato and said, can we come to your work and eat?  He said yes.  Then I decided to go to Perkins instead, kids eat free on Tuesday nights.  Well, 1 kids meal with each adult meal, so one of my kids ate free. 

The oldest 2 start battling as soon as they get home.  Katiana was in a rotten mood.  Tears flowing down her face.  Nothing was right.  Nobody could do anything right.  She had a bad day at school because during choice time she just sat in a chair and did nothing because she only had 5 minutes to play.  Ok, your whole day was ruined over 5 minutes?  It’s a 5 year old’s world, I just live in it

I told them that I had planned on taking them out to eat, a feat I never attempt by myself because let’s face it, I’m outnumbered when I’m by myself.  4 – 1.  We’ll be good.  We’ll be good!

I decide to brave it because why punish myself?  I wanted out of the house.

They were excellent at Perkins.  I couldn’t have asked for better behaved kids.  No fighting.  They ate their food, used their indoor voices, even Christiano was in a good mood, loving his macaroni he got.

Then the meal was over.  Time to leave.  As soon as we got in the car Jordan and Kat and Kat and Alyce start on each other again.   To the point it was distracting to drive the 2 miles back home.  Katiana broke Alyce’s heart when she hopped out of the car first.  Alyce is screaming, mom!  Kat got out first.  Katiana is saying, it doesn’t matter!  I said if it doesn’t matter, why’d you hop out first?  Because I opened the door.  So, I’ve got a wailing 3 year old and a now tired 1 year old plus an 11 year old and 5 year old who have declared that they hate each other.  (May I remind you that I hate you was supposed to be eliminated from the vocabs of my children?  That didn’t last long.)

We walk in the house and I said, get your chores done.  Stop talking to each other.  Just get your stuff done.  Pick pick pick pick pick.  Nothing was getting done.  Kat and Jordan were finding excuses to walk into each other’s space to bump, push (on accident of course) and generally make a nuisance of themselves to the other one. 

It culminated as I was changing Christiano’s diaper in my room and I heard Katiana start crying at the top of her lungs.  She comes in and said that Jordan threw something at her.  I yelled, Jordan, in here, now.  He comes in.  Well, you see, Katiana was going to throw something at him, so he picked up something and threw it, meaning to knock whatever she was going to throw at him (at this point, I really don’t care what they were going to throw at each other) out of her hands, and he “accidently” hit her.

My children have lost their electronics for quite awhile.  On top of other things.  After I was done with my rampage explanation for how things would continue for the rest of the night, my children meekly came in and did their chores and went to bed. 

After all that, it reminded me that my assignment for this last 2 weeks with Jordan from his counselor was to look up a website by Dr Ross Greene.  It’s called Lives In The Balance.  It’s based on collaborative problem solving. 

I love his Bill Of Rights For Behaviorally Challenged Kids.  My problem is, though I can’t lay it all on Jordan, but a lot of it is, Jordan has been challenging his whole life, right?  He is a beautiful child with a sensitive heart that I adore with my whole being who just can’t stay on task.  I haven’t found a reward or discipline that works yet for more than a few days.  In fact, up until this year, with his ADHD, his teachers and I would have to revisit every week/every other week incentives and rewards to try to give him incentive to behave. (Rereading this after typing the whole post, there is that whole kids do well if they “wanna” mentality that I need to break away from.)  A lot of my issues right now stem from the fact that now that Kat and Alyce are older, they see what Jordan is doing, and though they know they will get the same punishment as he does for the same behaviors, they follow right in his footsteps.  Mimicking everything he does.  He’s not listening to me, they aren’t going to listen to me.  He’s talking back, they are going to talk back.  He’s running around like a chicken with it’s head cut off, they are going to run around like a chicken with it’s head cut off.  I have one that has trouble concentrating and staying on task and 3 that think he’s the coolest thing ever (except when they hate each other).

Dr Ross Greene has tons of video and audio on his website that I am going to delve into today.  I watched this segment last week at the counselor’s office that was excellent.  The whole theory is kids do well if they can vs kids do well if they wanna.  How the 2 mentalities are completely different.  If kids do well if they wanna is right (which he says is wrong) your role is narrow.  The only thing you can do is make the kid “wanna”.  How, only by giving him incentive to do well (rewards and punishments).  If your busy making the kid “wanna” and he already does “wanna” you run the risk of making it worse.  He thinks all kids WANT to do well. (And truly that does make sense.)  They would if they could.  And with that mentality, your role just changed completely.  It’s harder but more productive.  Now your role is to figure out what is getting in his way and help him. 

If this kid could do well, he would do well, because kids do well if they can.

I really love that. 

Our school system and many throughout the country use PBS (Positive Behavioral Support).  Our counselor told us that many schools on the east coast are switching to the method that Dr Greene describes and it’s working.  I think I may get his books and if I like them, pass them on to our guidance counselor and see what she thinks about this method vs what they are using already in school.

So, that’s my plan for the day.  Completely just changed my attitude that I started with this morning by relistening to that video.  I was still frustrated as H-E-double hockey sticks (I got in trouble for saying it just like that when I was younger) when I was typing all this until I remembered that I needed to go through that website.  Listening to his theories makes sense and kind of destresses me when I think about it from the other mentality, the kids do well if they can one.

Do that and go to parent teacher student led conferences.  It shall be a productive day.

Have a great day!

ETA – ETA – Someone emailed me today and asked me about digital scrapbooking after they looked through my layouts, about how I print them out, etc.  My layouts I actually go through Artscow and put into a hardbound book.  When I make Christmas cards instead of making them in the traditional size for Holiday Cards which are a lot more expensive, I make them 4X6 and have them printed out for 9 cents each at Wal-Mart.  I’ve done the Christmas Cards, Valentine’s Day cards and this would be perfect for baby announcements, graduation announcements, etc.  It’s cheaper that way, plus easy to find envelopes for them. :)

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